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Department of Health and Human Services
Advisory Committee on Heritable Disorders in Newborns and Children
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Advisory Committee on Heritable Disorders in Newborns and Children

Next Meeting: Thursday, August 27, 2015 - Friday, August 28, 2015

Location: Via Webcast and In-Person

Agenda: Please see the agenda (PDF - 165 KB) for the August 2015 meeting. 

Registration: The meeting will be open to the public with in-person attendance limited to space availability.  Participants have the option of viewing the meeting via webcasting. Whether attending the meeting in-person or via webcast, all participants must register in advance at https://www.blsmeetings.net/ACHDNCAugust2015.

Location:

National Institutes of Health

5635 Fishers Lane

Rockville, Maryland 20857

Remaining CY 2015 Meetings:

Monday, November 2, 2015 - Tuesday, November 3, 2015

CY 2016 Meetings:

Feb 11 -12, 2016

May 9-10, 2016  

July 25-26, 2016  

Nov 3-4, 2016  

The Advisory Committee on Heritable Disorders in Newborns and Children (Committee) was established under the Public Health Service Act, Title XI, § 1109 (42 U.S.C. 300b-10), as amended by the Newborn Screening Saves Lives Reauthorization Act of 2014 (P.L. 113-240).

The mission of the Advisory Committee on Heritable Disorders in Newborns and Children is to reduce morbidity and mortality in newborns and children who have, or are at risk for, heritable disorders.

The Committee recommends that every newborn screening program include a Uniform Screening Panel (PDF - 2 pages) that screens for 32 core disorders and 26 secondary disorders; the disorders' selection was based on the Newborn Screening: Towards a Uniform Screening Panel and System (PDF - 329 pages).

The Committee advises the Secretary, U.S. Department of Health and Human Services on the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and standards. Specifically, the committee provides to the Secretary, the following:

  • Advice and recommendations concerning grants and projects authorized awarded or funded related to screening heritable disorders in newborns and children.
  • Technical information to develop Heritable Disorders Program policies and priorities will enhance the ability of the state and local health agencies to provide screening, counseling and health care services for newborns and children who have or are at risk for heritable disorders; and
  • Recommendations, advice and information to enhance, expand or improve the ability of the Secretary to reduce mortality and morbidity from heritable disorders in newborns and children.

The committee was chartered on May 7, 2015.