Nominations are being sought of qualified candidates to be considered for appointment as voting members of the Committee.
Interested applicants may self-nominate or be nominated by another individual and/or organization.
Nomination materials must be received by July 27, 2015.
Read the Federal Register notice for more details.
Next Meeting: Thursday, August 27, 2015 - Friday, August 28, 2015
Location: Via Webinar and In-Person
National Institutes of Health
5635 Fishers Lane
Rockville, Maryland 20857
Remaining CY 2015 Meetings:
Monday, November 2, 2015 - Tuesday, November 3, 2015
CY 2016 Meetings:
Feb 11 -12, 2016
May 9-10, 2016
Aug 25-26, 2016
Nov 3-4, 2016
The Advisory Committee on Heritable Disorders in Newborns and Children (Committee) was established under the Public Health Service Act, Title XI, § 1109 (42 U.S.C. 300b-10), as amended by the Newborn Screening Saves Lives Reauthorization Act of 2014 (P.L. 113-240).
The mission of the Advisory Committee on Heritable Disorders in Newborns and Children is to reduce morbidity and mortality in newborns and children who have, or are at risk for, heritable disorders.
The Committee recommends that every newborn screening program include a Uniform Screening Panel (PDF - 2 pages) that screens for 32 core disorders and 26 secondary disorders; the disorders' selection was based on the Newborn Screening: Towards a Uniform Screening Panel and System (PDF - 329 pages).
The Committee advises the Secretary, U.S. Department of Health and Human Services on the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and standards. Specifically, the committee provides to the Secretary, the following:
The committee was chartered on May 7, 2015.