May 4 – 5, 2023 Meeting

Agenda (PDF - 131 KB)

Meeting Minutes (PDF - 216 KB)

Webcast

• May 4, 2023 
• May 5, 2023

Transcripts

• May 4, 2023 transcript (PDF - 907 KB)
• May 5, 2023 transcript (PDF - 512 KB)

Presentations

Day 1

Newborn Screening and Early Intervention (PDF - 1 MB)

Don Bailey, Jr., Ph.D., M.Ed.
RTI International

Elizabeth Reynolds, Ph.D.
RTI International

Research on Benefits and Harms from Uncertain Results (PDF - 2 MB)

Beth Tarini, M.D., M.S., M.B.A.
Children’s National Hospital

Panel: Federal Agency Collaboration to Improve Newborn Screening Data Integration

Sickle Cell Data Collection (SCDC) Program (PDF - 1 MB)
Mary Hulihan, Dr.P.H.
Epidemiology and Surveillance Branch of the Division of Blood Disorders
Center for Disease Control and Prevention (CDC)

Implementing the Blueprint: Implications on Newborn Screening (PDF - 1 MB)
Jeff Brosco, M.D., Ph.D.
Director, Division of Services for Children with Special Health Needs, Maternal Child Health Bureau, HRSA

CDC’s Enhancing Data-driven Disease Detection in Newborns Project (PDF - 2 MB)
Carla Cuthbert, Ph.D.
Division of Laboratory Sciences Center for Disease Control and Prevention (CDC)

Amy Gaviglio, M.S., CGC
Division of Laboratory Sciences Centers for Disease Control and Prevention (CDC)

Day 2

Prioritization and Capacity Workgroup Interim Update (PDF - 454 KB)

Alex R. Kemper, M.D., M.P.H., M.S.
Lead, Evidence-Based Review Group

ACHDNC Decision Matrix (PDF - 130 KB)

Alex R. Kemper, M.D., M.P.H., M.S.
Lead, Evidence-Based Review Group

Ned Calonge, M.D., M.P.H.
Committee Chair

Ad-Hoc Topic Group Ideas - Conflicts of Interest (PDF - 167 KB)

Ned Calonge, M.D., M.P.H.
Committee Chair

Ad-Hoc Topic Group Ideas - Workgroup Priority Topics (PDF - 54 KB)

Ned Calonge, M.D., M.P.H.
Committee Chair